One-YEAR-old girl Jasmijn Duvenhage from Die Wilgers, Pretoria, was diagnosed with temporal lobe epilepsy at only four months old after several tests, including an EEG that measures electrical activity in the brain.
The toddler has a rare genetic condition that causes difficulty to control, severe epilepsy, slow development, and low muscle tone.
Unfortunately, after starting therapy for temporal lobe epilepsy, Jasmijn’s condition worsened, and she was diagnosed with West syndrome, for which she had received a prolonged course of extremely expensive steroid therapy.
However, this was not covered by the family’s medical aid in 2021.
“By Jesus’ mercy and grace, she came out of West syndrome, a miracle that very few children live to tell about.
“Unfortunately, Jasmijn developed several forms of horrifying epilepsy, ranging from mild episodes to absolutely…