I’ve had Ehlers-Danlos Syndrome (EDS) all my life, I just didn’t know it! At birth, my legs were twisted and my feet pointed inwards, but doctors thought this was just a birth defect.
The problems were corrected with surgery, and I grew up very active.
When I was 19, I had a nasty fall at a festival. From then on, things were never quite right...
Qualifying as a carer, I loved my job, but was plagued by aches and pains in my legs.
Then, in 2010, when I was 25, I met the love of my life, Seamus. But, around the same time, the pain got worse.
‘You’re limping pretty badly,’ Seamus worried.
Referred to hospital, for the next few years, I saw specialists, none of whom could give us…
