Over time, she won’t be able to walk, speak, swallow... A fairy is a delicate thing. But a fairy’s wings are as strong as steel.
Or at least, our Fia’s are.
She’s 4 years old. Our youngest child.
And she wears her fairy wings to the park, the shops, to play with friends…
Yes, they’re sweet, delicate. But they’re a constant reminder of how strong she is.
How strong she’s had to be.
Last year, when she was just 3 years old, our Fia was diagnosed with Alexander disease.
Ever since she’d been born, me and my husband, Matthew, 44, were convinced there was something wrong with Fia.
With three older kids, Fraser, 10, Freddie, 7, and Florence, 5, we knew what babies were like.
When they start gurgling, when…
